We are Liam and Dusya's Team

We are Liam and Dusya's Team
From our March 2014 Meeting

Sunday, February 6, 2011

Notes from my last consultation with Megan on Feb 3rd

I talked to Megan last week. I told her that Liam was really focused on people drawing to him. Here is what Megan said:

1) If Liam wakes up at 5:30am and the first thing he asks for is a marker for me to draw, that really means that he needs the drawing for whatever reason it is. It may feel safe for him. It is predictable. He is in control. It feels good. He is taking care of himself. He likes the visual stimulation. For whatever reason it is, he wants us to share the drawing with him, so Megan said to do whatever he wants us to do. She reminded me that he will be flexible again and then we can try variations and new games, but she said that when he looks inflexible, we should not fight it, but embrace it. If he needs it, we give it to him because we love his drawing interests. So, ladies, let's continue embracing this drawing phase that Liam is in. The more he gets teh drawing the way HE wants it, the more he will be ready to let go and change the game the way WE want it. But first, he needs to feel in control and be sure that we like what he likes.

2) About the throwing things from the balcony, Megan said, we should not react in an alarming way, but just tell him: "hey, remember, we don't throw things over the balcony". We can also explain to him that it is not safe and that there is a difference between a hard toy and a soft toy. She said we should throw lots of soft toys in teh playroom with him.

3) Megan thinks that right now Liam is interested in "visual stimulation" and that may be why he likes the drawing and the throwing. Some ideas he gave us are:
- hang party streamers from teh cealing
- play with pompoms and batons
- maybe a remote control helicopter
- water guns
- spray bottles
- balloons flying like rockets or like balls
- bubbles

I did get balloons and a helium tank and Liam had a lot of fun with Ashley blowing balloons and letting them go. Also, when we ran out of helium, we just blew the balloons ourselves and he loves when teh balloons fly away. We also put stickers on balloons. I want to hang balloons upside down from the cealing, so I am hoping some of you can help me with that project this week.  I also have party streamers to hang from his cealing. And, I have bottles of bubbles, too. Keep thinking of visual things that Liam could like. I know he loved to play with teh colored scarves with Kenia, too.

Here are some pictures of Liam throwing leaves in the backyard!

Thursday, January 27, 2011

Our Tony is liking school!

A quick update on Tony: He is liking going to school. God knows that for us that is the only thing that matters :) That, and he enjoying other kids, which he is also doing. I have met with his teacher and Tony is learning the routines and having fun. He even told me he wants to be a teacher! Of course, most of the time he wants to be an astronaut. And, he told me he wants to play "school" at home with his toys! Wow, what a difference!!! He is struggling a bit in PE, music, and library because he seems to think he can do whatever he wants in those classes, but that's ok. I am sure he will learn the routine of those classes, too. Hurray for our little kindergarten boy!

Our January Outreach with Megan

January was so busy that I did not get to publish our top 10 learnings from our outreach until now! Here is the list:

1. Don't match the energy level of Duch or Liam when playing with them. You set up your own energy level with lots of energy, excitement and enthusiasm!
2. Duchis' tent does not have a blanket anymore and we will stay outside and "join" her when necessary by creating our own game while she creates her game with the puppets in the tent. I loved seeing Megan playing "hot potato" and "Cootie" with the Barbies and seeing Duchis come out of the tent to play, too.
3. Use Liam's board in new creative ways. It was fun to see Megan draw a firefighter scene on the board while pretending to be a firefighter.
4. Don't expect less from Liam. He can do it. If Duchis has come this far, Liam will, too. The sky is the limit for both of them.
5. Be aware of Liam's eye contact when playing. He is not always looking at us when talking to us. Stop and tell him "Liam, are you talking to me?" or "Liam, if you look at me, I know you are talking to me" or "I need eye power to do  .... ", or just point to your eyes without saying anything.
6. Now that the attention span of the two kids is SOOOO much higher (Duchis was in Level 5 and Liam was in Level 4 during Megan's sessions!!!), our next emphasis is FLEXIBILITY with both kids. "It is ok if I don't get what I want all the time"
7. Duch is ready for board games with more "rules". Show them to her like it is the most amazing game in teh world.
8. Enter the room and start selling your game idea right away to the kids. Don't give it up too early and mix it up with whatever they propose to you.
9. Celebrate them a lot for all they are doing!
10. I will show videos of each other in our next group meeting.

Enjoy our group meeting pictures!

Some pictures of January games

Here is a little sample of games you guys have played with Liam and Duch this month. Enjoy!

Liam writing with Mary just supporting his arm a little


Liam building with Shelby

Duchis doing Valentine decorations

Duchis playing fishergirl with the big pool

Duchis and her castle

Duchis playing dress-up with Ashley

Great story from Cara about Duchis in OT

A note I got from Cara on January 6, 2011:

"Dusya had a great day today. She accepted a new and very challenging ball game in the swing room and was very talkative all day. She also accomplished one of HER "goals" she's been working on since before Christmas. In a cabinet in the fine motor room I have two boxes of sensory toys. One is full of light up spinning toys including a Christmas snow scene that really snows. Another is a box of wiggly balls she's always loved. Earlier this week she finally figured out how to ask for the wiggly balls and we bargained balls for fine motor work. But what she really wanted was the snow toy. She's asked for it several ways that weren't specific enough ("I want that" --pointing to box + saying "It's snowing"). Today she went to the cabinet and tried several unsuccessful requests then told me "I want to climb". I told her "go ahead." She tried for a while then grabbed my hand and pulled me to the cabinet. I stood there waiting for her to communicate and I could tell she was getting frustrated so I prompted "If you need help, you can say "I need help"". She tried several versions of that and I responded with "You need help with what? I would love to help you, tell me what you need, etc" Until she finally said "I need help climbing up there" + pointed to teh cabinet/counter at which point I helped her up and she got the toys she's wanted for almost a month. I am so proud of her."

- Cara.

That same day, I also got a second note from Cara with this drawing:
"Dusya made this on 1/6/11 with only Ms. Cara's finger touching her hand. She wrote Cookie with only about 15% help. I am so proud of Dusya!"

Friday, December 31, 2010

Outreach Schedule with Megan (Thursday January 6 to Saturday January 8)

January 6, 2010, Thursday

9:00-11:30 Megan and Liam Play
11:30-12:00 Q&A session
12:00-1:00 LUNCH
1:00-2:00 Megan and Liam Play
2:00-2:30 Observe and Feedback to Ashley
2:30-3:00 Observe and Feedback to Shelby
3:00-3:30 Observe and Feedback to Jessie
3:30-4:00 Q&A

January 7, 2010, Friday

9:00-11:30 Megan and Dusya Play
11:30-12:00 Q&A session
12:00-1:00 LUNCH
1:00-2:00 Megan and Dusya Play
2:00-2:30 Observe and Feedback to Volunteer 1
2:30-3:00 Observe and Feedback to Volunteer 2
3:00-3:30 Observe and Feedback to Volunteer 3
3:30-4:00 Discuss Program goals for meeting and Q&A

January 8, 2011, Saturday

9:00-12:00- GROUP MEETING

Sunday, December 26, 2010

Highlights of our programs as the year ends

Hi ladies, As the year ends, we have several things in mind:

1) Megan is coming!!!! She will be in our house on Thursday, Jan 6th, Friday, Jan 7th, and Saturday, Jan 8th. The group meeting will be on Saturday Jan 8th. Please save those days and particularly the group meeting day because this is very important training we will get from Megan. Details of the agenda to come.

2) We are starting new exercises for Liam to get rid of his tip-toeing and decrease his touch-sensitivity and we need all of  you to learn them. Please scroll down in this blog and go to the previous page of "older postings" because there are 9 videos of Liam and Yulene, his new OT for reflex integration. Each video goes from 2 to 5 minutes. They are short and easy. Please watch them several times and do these exercises with Liam every time you see him, even if you only come once a week to play with him. Consistency and persistance are the key to get rid of the tip-toeing.

3) Tony is going back to school on Jan 4th, so that is really huge for us. Running 3 programs in the last 5 months has not been easy logistically. We have been blessed to be able to help him in his development and we think he is ready to enter the school system. As all of you know, in the last 5 months, we have worked with him on several fronts:
- Evaluation at Brain Balance to know his strengths and weaknesses
- Gluten-freen, Casein-free, Soy-free, Sugar-free diet + great supplements to strengthten his body and inmune system
- Sequencial homepathy to detox his body and strenghten his inmune system
- NAET to get rid of allergies and strenghten his inmune system
- Speech to improve his language
- Occupational therapy to balance his sensory system and nervous system
- Physical therapy to strenghten his body
- Quiropractor to help straighten his shorter leg and balance his nervous system
- Orthopedic doctor to confirm the shorter leg is growing fine
- Reflex integration to get rid of primite reflexes
- Integrative listening to improve brain processing
- Many many hours of one-on-one SonRise play to give him undivided attention and improve his socialization skills.
- Many hours with his brother and sister to understand them better and see that they are improving and interacting with him more and more.
- Many excursions to his favorite places (e.g. NASA!) to develop his interests.
- Lots and lots of love so that he knows he is perfect, super smart, super sweet, and we all root for him
Of course, after all this, we are exhausted :) The result? A happy, calmer, more attentive kid, who has improved in all fronts! Thank you to all of you who have helped us in these last 5 months with Tony's program. Please keep sending him all positive and loving energy. We will continue working on him when he goes back to school.
To end, here are some pictures of Christmas' Eve!